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Spinal Cord Injury and Disease Resources

General Resources

• American Association of Spinal Cord Injury Nurses
• American Association Of Spinal Cord Injury Psychologists And Social Workers
• American Paraplegia Society
• American Paralysis Association
• American Spine Injury Association (ASIA)
• Apparelyzed - Spinal Cord Injury Peer Support
• Canadian Paraplegic Association
• Christopher and Dana Reeve Paralysis Resource Center is a national clearinghouse for information, referral and educational materials on paralysis and spinal cord injury.
• Consortium for Spinal Cord Medicine
• FacingDisability.com a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts.
• The Healthy Gimp - disability & spinal cord injury information
• InjuryBoard.com - Spinal Cord Injury Resource
• National Spinal Cord Injury Association (official site)
• NSCIA - Greater Boston Chapter
• National Spinal Cord Injury Association of Illinois
• Paralyzed Veterans of America
• PushToWalk
• Rick Hansen Institute
• RVL S.C.O.R.E. International--A not-for profit organization that assists paralyzed individuals
• Shake-A-Leg
• Spinal Cord Injuries Australia
• SPINALCORD Injury Information Network
• Spinal Cord Injury Manual for Patients and Families
• Syringomyelia Facts
• Tetraplegic Living - Living Life in a Wheelchair
• The Spinal Cord Information Pages - Your one stop site for all SCI information!
• The Spinal Cord Injury - For Your Information (SCI-FYI) Resource Guide
• The SCI Zone .com - The Spinal Cord Injury Zone!
• The Steadward Centre for Personal & Physical Achievement. (was Rick Hansen Center)

• California Back Specialists
• Kessler Rehabilitation Corporation
• Madonna Rehabilitation Hospital
• Magee Rehabilitation - Philadelphia
• Mt. Sinai Medical Center Rehabilitation Medicine
• National Rehabilitation Information Center
• New England Regional Spinal Cord Injury Center
• Pushing Boundaries | Intensive exercise therapy for people with spinal cord injuries and other forms of paralysis | Redmond, WA
• NW Regional Spinal Cord Injury System - Spinal Cord treatment center
  

Research for Treatment/Cure

• American Paralysis Association
• CenterWatch Clinical Trials Listing Service
• Christophe Reeve Paralysis Foundation
• Kessler Research
• Project RESTORE
• Restorative Therapies
• Spinal Cord Research Centre
• Spinal Cord Workshop from the Bedford Stem Cell Research Foundation
• Spinal Research  -  a cure for paralysis from spinal cord injury
• The Miami Project to Cure Paralysis
• The Myelin Project is a non-profit organization engaged in research to find a way to repair myelin as soon as possible.
• Translational Pain Research at the Brigham and Women's Hospital
• Why Bush's stem-cell policy is reasoned — and why it's working
  

Bulletin Boards/Chat

• Quad Central
• Arizona Spinal Cord Injury Support Group
• MSN DisAbilities Community

Newsletters/Magazines

• Spinal Cord Injury Update
• New Mobility Magazine
• New Horizons Newsletter
• Paralinks Electronic Magazine
• Electric Edge

Articles/Pamphlets

• Assist Cough in SCI
• CNN - Hand implant gives quadriplegics new grasp on life - August 18, 1997
• Spinal Cord Injury Forum Reports
• SCI Informational Pamphlets
• Spinal Cord Injury Workshop -- table of contents
• Spinal Network: The Total Wheelchair Resource Book

Consortium for Spinal Cord Medicine Consumer Guides

• Autonomic Dysreflexia: What You Should Know
• Neurogenic Bowel: What You Should Know
• Pressure Ulcers: What You Should Know
• Depression: What You Should Know
• Preservation of Upper Limb Function Following Spinal Cord Injury: What You Should Know
• Expected Outcomes: C1-3 Spinal Injury
• Expected Outcomes: C4 Spinal Injury
• Expected Outcomes: C5 Spinal Injury
• Expected Outcomes: C6 Spinal Injury
• Expected Outcomes: C7-8 Spinal Injury
• Expected Outcomes: T1-9 Spinal Injury
• Expected Outcomes: T10-L1 Spinal Injury
• Expected Outcomes: L2-S5 Spinal Injury

University of Miami/Rehab Team Site

• RehabTeamSite
• SCI Manual for Patients and Families
• Automatic Dysreflexia (Hyperreflexia)
• Bowel Program in SCI
• Feelings and Reactions in SCI
• Home Safety and Modifications
• Other Complications of SCI
• Sexuality in SCI
• Skin Management in SCI
• Support Groups, Organizations, Research Centers, and Resources in SCI
• Urinary Tract Management in SCI

NSCIA Factsheets

• #1 - Common questions on SCI
• #2 - SCI Statistics
• #3 - Sexuality after SCI
• #4a - Choosing a Rehab. Facility
• #4b - CARF & NIDRR Rehab. List
• #5 - What's New in SCI Research?
• #6 - The Importance of Basic Science in Research
• #7 - Tendon Transfer Surgery to Restore Hand Function
• #8 - SCI Awareness, The Importance of Language
• #9 - Functional Electrical Stimulation
• #10 - Male Reproductive Function after SCI
• #11 - What is a Physiatrist?
• #12 - Facilities and Resources for Vent Users
• #13 - Reading Resources
• #14 - Resources for Pediatric SCI
• #15 - Travel After SCI
• #17 - What is Autonomic Dysreflexia?
• #18 - Starting a Support or Discussion Group

Email List Groups

• Vent-Users List
• Quadriplegic List

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• Quadriplegic (Tetraplegic) Discussion Group: This Internet mailing list, called QUAD-LIST, is a forum for quadriplegics (tetraplegics) to communicate with one another. To subscribe to the list, follow the instructions found on the QUAD-LIST web page.

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• SCI Mailing List: There is an Internet mailing list on the topic of spinal cord injury, called SCIPIN-L List. To join it, send a message to listserv@health.state.ny.us with only the words "subscribe SCIPIN-L" in the body of the message. (After you join, send all messages to the list to scipin-l@health.state.ny.us, NOT to the address above.)

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• MOBILITY SJU Mobility Disablities List. To join, send a message to listserv@maelstrom.stjohns.edu with only the words "subscribe MOBILITY" in the body of the message. (After you join, send all messages to the list to mobility@maelstrom.stjohns.edu, NOT to the address above.)

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Other Resources

• Assistive Devices/Products for Independent Living
• Adapted Special Needs Clothing
• Computer Accessibility Products
• Home Automation/Environmental Control
• Exercise Devices/Equipment
• Wheelchair/Mobility Products
• Vans/Transportation/Lifts
• Medical Supplies
• Other Products/Services

• Center for Neuro Recovery

Entrez PubMed MEDLINE & PreMEDLINE Search for Spinal Cord Injury

• alt.med.cure-paralysis -- Cure Paralysis Now (Newsgroup)

Expressing Support For America's Troops

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